A week last Wednesday, we were back at the Royal London for Fintan's second application of cryotherapy. It was another long day, but Fintan, as always, was fantastic. The suspicious areas in his left eye are responding well to treatment and his right eye remains stable. Mr Hungerford commented that, as Fintan is getting older and bigger, he is now able to get to good photographs of the retinas and is more able to see round the peripheral of the eyes to see what is going on.
We are going to try again for an 8 week gap before the next examination - hopefully this time we will not have any cause for concern and have to return to London early!
After what had been quite a stressful Summer Holidays, we have just returned from a blissful week in Devon. We stayed on a remote farm in the middle of Devon - the boys were able to wander off on their own to explore the farm and they thoroughly enjoyed the chance to help out with the sheep and pigs and to collect eggs for breakfast! Archie now wants to be a farmer (Barnaby thinks it would be too much like hard work!) and shed a few tears when it was time to come home. We had such a lovely break that we are trying to work out when we can go back again!
Fintan and the boys at Wembworthy Down Farm, Devon
Raising Awareness
Whilst we were away it was a very good week for raising awareness of Retinoblastoma - there was an article in several of the national newspapers which resulted in an item on BBC Breakfast with a representative from CHECT (The Childhood Eye Cancer Trust). The white eye reflex and how treatable the cancer is was very much the focus of the article and hopefully this message will have reached a wide audience.
1 comment:
What a beautiful child. In recent articles online there has become a growing interest in this rare disease that effects children. Keep us posted and God Bless.
Post a Comment