Update

We have finally had confirmation today that Fintan will have his remaining eye enucleated.  The Retinoblastoma team in London have consulted with teams in Philadelphia, Birmingham, Sweden and Fintan's original consultant (who retired from the NHS a couple of years ago) and all have come back with the same opinion that the only safe option for Fintan is to remove the eye.

Surgery is planned for Wednesday 24th April.  Of course, we are all absolutely devastated that Fintan will be losing his sight, but his well being is more important and everyone involved in his care is in agreement that if his eye was to remain in place the risk of the cancer spreading was very high and as his tumours appear to be resilient to all treatments thrown at them his life would be in danger.

Fintan was back at school today, following a meeting with his teachers (and a trip to his local hospital with another infection in his existing artificial eye); they have already been very supportive and we feel confident that Fintan will cope in this familiar setting, with his friends and teachers he knows well.  The plan is to get him back to school as soon as possible after surgery; it is going to be hard, but Fintan is a very special boy and will get through this with a big smile on his face.

Fintan had a fantastic weekend in Disneyland Paris, followed by a trip on the London Eye on Tuesday and a trip to Thomas Land at Drayton Manor, Tamworth on Friday/Saturday.

Breakfast with Donald

Fintan's special treat
- 1/2 hour playtime with Goofy

 

Breakfast with Minnie Mouse

The London Eye 

Thomas Land - Drayton Manor Hotel

Terence's Driving School!